Last week we were in DC with the Epilepsy Foundation. My 14 yr old son, Henry, has severe epilepsy (along with a host of other serious medical conditions) and was chosen by the Texas Epilepsy Foundation affiliate to represent a large part of Texas on Capitol Hill and advocate for epilepsy awareness and level funding for epilepsy research. We were able to sight see for two days and then we attended a day and a half of training. On the last day, we went to Capitol Hill and met with staff from the offices of our Senators and Representatives. It was an awesome experience! The very best part of the experience was that Henry got to meet other teens and young adults living VERY accomplished lives with epilepsy!!! They were incredibly inspiring!
This is our first day in DC. This is one of my favorite outfits (you have seen it before!) and I wore it on the plane. We ended up walking for MILES and while these shoes are comfortable – they are not that comfortable!
My boys and I are in front of the Washington Monument! It was really windy and chilly! Henry is wearing his seizure helmet. Can you believe he goes most of the day in this helmet? And he is confident and not at all embarrassed! It amazes me! I definitely was not that brave or confident when I was in middle school!
Flowers at the WWII Memorial
My family on Capitol Hill! Sam and I had a terrible case of STATIC!!!! And for some reason, I thought that wearing hose was a good idea…
Henry sitting at the desk of one of the TX Representatives!
A sight seeing outfit! Old Navy Scarf, J Jill Cardigan, Eddie Bauer jeans and Mephisto Shoes (SOOOOOO comfortable!)